Happy Easter to everyone, I hope you had a wonderful day and got to spend it with family and friends. We went and ate lunch at my Grandma's and had a feast, and got to see most of my relatives. It was nice to get out of the hospital for awhile but at the same time your mind never completely leaves the NICU, and neither does your heart. Anytime you leave her your heart aches because you want to look in the back seat and see a car seat with your baby in it, but that dream is yet to come true. I know it'll happen one day but with her recent infection it gets discouraging because you know that it's pushed her development a couple of weeks so that's that much longer that she's going to be in the NICU.
We spoke with Dr.Wagle this morning and he told us her culture came back positive again, he said he wanted to wait to see if tomorrow culture came back positive before taking her central line out, the central line is the last thing you want to remove from her because she gets all of her nutrients and fat from that line. He also said that her platelet count was low again so he wanted her to get more platelets. They had to sedate her late last night and early this morning because as she's started feeling a little better she's gotten more aware of the tube in her throat and she doesn't like it at all. We spoke with the nurse practioner tonight and she told us that Dr.Wagle had talked with a Infectious disease specialist and that he had recommended holding off on the spinal tap for now, he said the type of infection she has rarely turns into Meningitis and with her platelets being critical low the risk out ways the benefit so it doesn't' sound like she's going to have to have a spinal tap done after all. The Infectious disease specialist also recommended stopping the Vacamyacin and just treating her infection with Ampicillin which she said actually has less side effects then the Vacamyacin. We are praying for a negative culture tomorrow morning and I hope she starts feeling and looking better, this is day 3 and I haven't notice any change in her but Dr.Wagle said her respiratory system was showing signs of her breathing more on her own. Dr.Wagle also told us she has an enlarged heart, he had mentioned this to us before but I took it as not being important because at the time I don't think it was but this morning Dr.Wagle said that Brinley might have to go ahead and have her PDA fixed once she is out of the woods with her infection, I don't understand all of this stuff but he said it's now important that we have it fixed instead of waiting until she's 1 or 2. Brian asked if it could go ahead and close up on his own and he said "No". I'm not going to even think about Heart surgery until the time comes for me to worry about it, right now my focus is on her infection and getting her over this hurdle.. Please pray that Brinley's culture is negative tomorrow and that she is feeling better.
Happy 1st Easter Brinley, Brinley got alot of nice presents for Easter. Unfortunately I didn't take my camera with me when we went to Grandma's for lunch so I could take pictures of the cute pink and purple onesis her Great Grandma bought her and her Aunt Brenda got her a pink bunny. It was all so sweet, and I wish I would of had my camera because I like to keep up with all this stuff so Brinley can look back on it when she gets older.
We spoke with Dr.Wagle this morning and he told us her culture came back positive again, he said he wanted to wait to see if tomorrow culture came back positive before taking her central line out, the central line is the last thing you want to remove from her because she gets all of her nutrients and fat from that line. He also said that her platelet count was low again so he wanted her to get more platelets. They had to sedate her late last night and early this morning because as she's started feeling a little better she's gotten more aware of the tube in her throat and she doesn't like it at all. We spoke with the nurse practioner tonight and she told us that Dr.Wagle had talked with a Infectious disease specialist and that he had recommended holding off on the spinal tap for now, he said the type of infection she has rarely turns into Meningitis and with her platelets being critical low the risk out ways the benefit so it doesn't' sound like she's going to have to have a spinal tap done after all. The Infectious disease specialist also recommended stopping the Vacamyacin and just treating her infection with Ampicillin which she said actually has less side effects then the Vacamyacin. We are praying for a negative culture tomorrow morning and I hope she starts feeling and looking better, this is day 3 and I haven't notice any change in her but Dr.Wagle said her respiratory system was showing signs of her breathing more on her own. Dr.Wagle also told us she has an enlarged heart, he had mentioned this to us before but I took it as not being important because at the time I don't think it was but this morning Dr.Wagle said that Brinley might have to go ahead and have her PDA fixed once she is out of the woods with her infection, I don't understand all of this stuff but he said it's now important that we have it fixed instead of waiting until she's 1 or 2. Brian asked if it could go ahead and close up on his own and he said "No". I'm not going to even think about Heart surgery until the time comes for me to worry about it, right now my focus is on her infection and getting her over this hurdle.. Please pray that Brinley's culture is negative tomorrow and that she is feeling better.
Happy 1st Easter Brinley, Brinley got alot of nice presents for Easter. Unfortunately I didn't take my camera with me when we went to Grandma's for lunch so I could take pictures of the cute pink and purple onesis her Great Grandma bought her and her Aunt Brenda got her a pink bunny. It was all so sweet, and I wish I would of had my camera because I like to keep up with all this stuff so Brinley can look back on it when she gets older.
Isn't this the cutest little blanket and bunny? Her Grandma got her the blanket and Brian I got her the bunny it says "Jesus loves Me" and when you squeeze it's tummy it sings "Jesus loves Me" and I know Jesus loves Brinley and he is cradling her during stay in the NICU and he never leaves her side.
And my niece and Brinley's cousin Courtney got her all this cute little stuff, it's precious don't you think?
This is a picture of Brinley's isolete, the nurses took her picture last night and made that cute little Easter picture of her that you see at the foot of her bed, and they allowed us to keep her bunny rabbit in the NICU all day but we had to take it out this afternoon. We always keep a blanket on her bed because it keeps it nice and dark inside for her, she doesn't like light. I didn't take a picture of Brinley today, I just take bring myself to take her picture with that tube in her throat I just want to forget that she's ever been on this ventilator. I guess you could say I'm in denial about this but I'm not I just don't care to remember it. I hope all of you have had a great Easter, and please remember to give God the praise for all the blessings you have in your life..
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